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Growing Up

I was always slower, weaker and less physically developed than my peers. The doctors kept telling my parents that I would begin to catch up soon and that nothing was wrong but this wasn't the case. At the age of 8, I had a muscle biopsy, where we received the devastating news that I had Ullrich Congenital Muscular Dystrophy. The prognosis? I'd need a wheelchair within the next few years, I'd be on a ventilator by 14 and I'd be lucky to make it past 20.

From that point forward... Team Jed was born

Friends, family and groups of individuals from all over came together to raise money for Team Jed - a fund dedicated solely to raising money for research into Muscular Dystrophy. As a collective, we have raised over £250,000 and don't plan on stopping until those after us can live a life without physical limitations.

Find out more about our events

Join the Team

Join our email list and stay up-to-date with the latest fundraising events, news and scientific research that is going on

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